Louise's Profile Page
UPDATE: December 2011. Status is holding as I enter into my 5th year of survival for 2012. Side effects relatively small, tired at times and mild bone pain. Quite amused at my own forgetfullness, making my husband crazy looking for things I have lost and found. Making sure I take my meds as prescribed and followup scans and Oncology appts. as scheduled. UPDATE: August 2008. Saw Oncologist who confirmed spread of cancer to my spine T9 & T10 also T6 and L3 show some abnormality. This is a comparison to the other 3 bone scans - 1st being July 07 right after lumpectomy. My surgeon prescibes this test for every breast cancer patient. Probably a precaution, which in my case was a good thing. I am not sure what is going to happen next other than another Mammogram and Ultra sound of my breasts in Sept., another bone scan and CAT scan in Nov. so this might be where they find more. God forbid those cells keep mulitplying. It's leap frog at its' finest game. I feel over anaylized, overpricked, overradiated but somehow glad that I live in Canada where it is all FREE. My private insurance pays 80% of all my drugs as well as massages, chiro, physio, dental, and so on. Why do you think we have a waiting list for immigrants? Not because they love the winter here! So for now I wait but I live. Oct. 09. Bone scan and CT, Oncologist's report at the end of the month. Whoopee, I can hardly wait. I still have my sarcasm working.
Feeling sometimes bitchy I put that down to arimidex. I hate the revisiting of menopause, night sweats, etc. Sometimes I just feel tired and can't keep up. UPDATE AUG/08. Not as tired anymore, but the rest is the same.
Surgery Description, Dates & Side Effects
Lumpectomy May 2007. No side effects. Recouperated really well. My scars are barely noticeable. But one breast is slightly smaller. Hard to tell since I am a DD, but I can. UPDATE AUG/08. Can not see the scar, but feel a solid 4" line under my arm where lymph nodes were checked.
Radiation or Proton Therapy Description, Dates & Side Effects
Sept-Oct. 07. 26 treatments went well. Yes tired but not too much. Glad it is over. Hardly any burning. Used Lubriderm cream all the time; that helped. UPDATE AUG/08. Enjoyed the summer sun but made sure to use SPF 50 so as not to burn.
Chemotherapy Description, Dates & Side Effects
Pamidronate or otherwise known as Aredia. Assists in replenishing bone loss. Given via IV monthly. Tired, headache after treatment, diarrehia, bones ache all over. MAR/08 New treatment - Clasteon - 4 pills/day but NO IV. HOORAY. No side effects except bone pain. I went on the internet to find an alternative cause it took 6 jabs every time with the IV and I just hated the thought of doing that for the rest of my life.
Hormone Therapy Description, Dates & Side Effects
Arimidex taken at night. Started treatment Aug. 07. Sleep deprived, night sweats, bones ache, sometimes tired, always hungry. UPDATE AUG/08. Side effects have lessened but just slightly.
Bone Marrow Transplant Description, Dates & Side Effects
Immune Therapy Description, Dates & Side Effects
♫ Happy Birthday to you ♫
♫ Happy Birthday to you ♫
♫ Happy Birthday dear Louise ♫
♫ Happy Birthday to you ♫
♫ I hope you had a beautiful and blessed day ♫
♫ Love and Hugs ♫
♫ Joyce ♫
♫ Happy Birthday to you ♫
♫ Happy Birthday dear Louise ♫
♫ Happy Birthday to you ♫
♫ I hope you had a beautiful and blessed day ♫
♫ Love and Hugs ♫
♫ Joyce ♫
Happy Birthday, Weezie! I hope you have a wonderful day! Hugs!
Upside down dog because of inept owner's inability to work technology!!!
Got an email you left a comment starting with Easter eggs...but can't find it here? Spooky :)
Got an email you left a comment starting with Easter eggs...but can't find it here? Spooky :)
Got an email you left a comment starting with Easter eggs...but can't find it here? Spooky :)
Sorry for the typos. I should have proof read myself. :-/
Louise, thank you for the birthday wishes and your kind words. It's so good for my soul to hear someone talk about my Gemma. Most people avoid bringing even her name up for fear I will fall apart. They don't realize that her name is a song to my ears and heart. I still get weepy but I'd rather weep that have people pretent she never lived. Hugs from Pittsburgh, Nancy
And thank you, Louise for your comments, and update. Yea, those "Doctoring Times". It's a wonder more of us don't go stark raving insane sometimes. I'm headed out to WINTER myself, from lovely mild San Francisco to Madison, WI. Burrr; I'm totally not ready & trying not to freak. So, I'll be out of internet connect for a bit. Hugs and Cozy thoughts, Nicole
Can't wait for spring either. Since the bus fare to NYC is only $13. I think I'm going to see any show that's taping...not waiting for another cancer show...I've tried to watch the Katie show and I don't really care for it, lol
I hope you had a stellar birthday celebration, Louise. And I also hope you continue to enjoy your entire birthday week.
Hope you had a great BDay, Weezie!! xo
Thank you for friending me. Best wishes to you and yours.
♥ ♥ Hi Weezie,♥ ♥ I like my musical note, too. I first saw it on someone Facebook page and I copied it to use on my birthday wishes. I thought it added a cute touch. Just copy it and paste it where you want it to be. ♫ ♫ ♫ ♫ I hope you are feeling good and will have a GREAT BIRTHDAY PARTY ON SATURDAY. I hope the weather is beautiful for your party. It is beautiful weather here. It has been in the 80's most days this week and will be in the 70's all next week. Oh, to be 62 again. I turned 70 last November. Enjoy your day and take care. Love, hugs, prayers and blessings, my friend. Joyce In NC
Dear Louise, I probably was channeling Helen when I wrote you birthday wishes. So I do understand why you wrote: "Helen You are so sweet to send me those B DAY wishes." This time I'm wishing you HAPPY BIRTHDAY from me, Nicole. ...And many, many more. You go Birthday Girl! Three Cheers for Louise! Hugs, Nicole
Hey Weezie! How nice to hear from you! I have been thinking about you too, as I see your birthday is approaching! You'll be 29, right? ;) I hope you have a wonderful celebration and it sounds like the weather is cooperating. Things are in bloom here, including my allergies! I have tried to limit my outdoor time during this period, as I can get really miserable. I see a lot of Claritin in my near future! Oh, get this--I am training to do a marathon on April 21st. I haven't really announced that yet on BFAC, but it's for real! It will be in Indianapolis. I think I can do it and since I'm not a young person anymore (unlike you!), I think it's now or never. We are taking a friend with us who will do the race with me--he's 36 years old and in excellent shape. I'm SO going to get my butt kicked! All I want to do is finish the race in less than 6.5 hours and I'll be happy. My days are spent running, weight lifting and biking now. My poor house is a mess! I'm sure my husband will be glad when this is over! lol! It's almost an obsession at this point! Anyway, that's what I'm doing. I am taking a break to go get a haircut this afternoon. Hmmmmm, perhaps I should get a buzz cut to make myself more aerodynamic! Lots of love to you and birthday wishes aplenty--enjoy your special day special friend of mine! Love, Martha
I AM 3 DAYS EARLY WITH YOUR WISHES BUT I WAS AFRAID THAT IF I WAITED UNTIL SATURDAY I WOULD FORGET. ♫ Happy Birthday to you ♫ ♫ Happy Birthday to you ♫ ♫ Happy Birthday dear Weezie ♫ ♫ Happy Birthday to you ♫ ♫ Have a beautiful and blessed day ♫ ♫ Love and Hugs ♫ ♫ Joyce In NC ♫
Happy Birthday Week, Louise! Or, if you celebrate the whole month, then Happy Birthday Month! So, you're the reason everybody has a smashing good time every March 17th. ...World famous, you are. Hugs and party favors to you Helen.
They only show up on the memorial section of someone who has passed away. You have to go to their profile then look in the third column, the link to the memorial section should be at the top. Then at the bottom of all the candles there will be a notice to light a candle. It doesn't show up if you are already lighten a candle. So maybe you already lite one??
Hi gal just got back on line here. It has been a while be but I am doing well and not to many side effects. Hope all is well with you, Love Me
Hey Sweetie. Thanks for the comment on the birthdays. Do you have that email that went out? I can't find mine. If not I will check this weeks to make sure they are right. Thank you so much for letting me know!! Hope you are having an wonderful holiday. xoxoxox, Jill
Can we talk here? For some reason my Oncol. is worrying about me being Anemic? I looked it up and felt like I should have stayed well away from that kind of knowledge. I wonder if it’s the drugs I’m taking? I had a colonoscopy in case it had something to do with that. NOPE all clear. So something is making my blood show signs of bleeding or lack of red blood cells. i am freaking….. Posted on November 11, 2011 at 2:38:51 AM by Wheezie, I just tried REPLYING to this post twice but for some reason it didn't show up. Here goes one more time. I am sorry I didn't answer sooner but I was in the hospital with a blood clot in my left lung (and I am on coumadin) from November 11 to November 15. I don't know what caused it but I can't help but wonder if the colonoscopy I had on September 3 had something to do with it. They removed an 8 millimeter polyp and I was off the coumadin for 3 days before and 5 days afterwards. Did they remove any polyps when they did your colonoscopy? Was the amenia showing up BEFORE you had that done? If your onocologist can't find any reason for you being amenic, then it very possibly might be some of the drugs you are taking. I have had an awful time keeping my potassium up since I started the A-fib drug, Multaq in July 2010. I also had to have blood transfusions each time I had chemo in 1994 except for the first one and the last one. I HOPE and PRAY that by now your oncologist has found the cause. Please let me hear from you. My love and prayers are with you, my dear friend. Hugs, Joyce
Hi Louise, My apologies, I just saw your comment on my page from a month and a half ago (you referenced Deej)...thank you so much for your words of encouragement and support! Hugs, Lisa
Palp, I never noticed cause I haven't done much posting on my page. Just wait though,
Louise, I just realized I was not a supporter of yours! I can't believe it. After all this time. So sorry... Palp.
are you on Face Book?
Hi Weezie, Thanks for your comments on my blog. And you have fabulous taste in t-shirts. As for the state of health care in the U.S., you are preaching to the choir. Health care is a basic human right, and it is immoral and inhumane to make health care inaccessible for so many people. We pay outrageous premiums for insurance. My daughter has no insurance and we paid for an emergency room visit for her last month. I could go on and on ... I have a long rant. Canada is not interested in 60-year-old immigrants with a history of cancer, so we are stuck here. There is such rancor in the U.S. Congress right now, and the Republicans have become so radicalized that nothing reasonable can be accomplished -- like cracking down on insurance companies and drug companies. Be well. Love Andrea
Weezie, LOL ... THANKS for the compliment. I have lost about 40 lbs. in the last 5 years since my husband died and I changed my eating habits. I still need to lose about 40 more lbs. It is a slow process but I tell everyone that I will make it if I live long enough ... LOL. I love the beach. We only live a few hours from the beach but I had not been to the beach in probably 15 years so it was really a treat. I had been to several of the other beaches in NC over the years but that was the first time I had ever been to the Outer Banks. It was really pretty and I enjoyed the trip. My daughter’s friend had her wedding on the beach. It was the first time I had ever seen a beach wedding and it was beautiful. Take care and I will talk to you later. My love, thoughts and prayers are with you. Love and hugs, Joyce In NC
Hi Weezie, I am doing good. Actually, much better than I have in quite a while. I stay busy and don't get on here as often as I should. I have to pace myself also and not overdo. It seems to take forever to get things done anymore. I am just very thankful that I am doing as good as I am. Yes, it is so sad to say but there are so many people in the world today that don't care for anyone but themselves. I don't understand that feeling. I hope you continue to do good. My love, thoughts and prayers are always with you as well as all the wonderful people on BFAC. Take care of yourself and hang in there, my friend. Talk to you soon. Love, hugs, prayers and blessings, Joyce In NC
Hey, LOU! Hope your good! All you need to do is go to Jill's blog about 'Free T-Shirts', you will see a high-lighted link for Alexa. Click on it, you will be there, click on "Review". They will ask you to create an ID and a password, but it's not complicated. Then you can give us 5 stars and a review! Thanks for the help, it's so important to Jill and all of us :) xoxo
Weezie, I have done research, more than many people and what the issue is simply non-healing tissue in the vagina. I am so thankful for this new doctor telling me that I actually have a chance with the hyper baric oxygen chamber to heal, if it heals the radiated damaged tissue then I have a STRONG possibility for at least minimal vaginal pain that can be managed through medication. Right now the medication I take does not manage my pain at all vaginally, it works at about 75% on my abdomenal pain. But the vaginal/rectal area causes issues with my ability to sit, stand, walk etc. By the time the evening comes along I walk bent over in half and can hardly lift myself off of the couch. The last resort is considering the reversal of my neo vagina as it is a very extensive surgery (5 hours plus) and with the bleeding problems I am having due to the vascular tissue means hemmorraging is a huge risk. So I would and will think twice about moving forward with that surgery. If the surgery requires both abdomenal opening and working vaginally then the option for it will probably be a no go since my abdomenal adhesions are so severe. I hope this explains a little better where I am at. While I was still going through chemo, I was told to wait about 4 months and all should heal up. Now I am a year and two months past chemo and no healing has happened, in fact bleeding became worse and I was told no excercising or doing anything that might cause me to bleed. Well nothing stops from irritating the fragile tissue. Right now I have sutures in where the doctor pulled tissue over the major veins in an attempt to protect them and to help ensure I do not hemmorrage. I did not realize at what risk I was at until two weeks ago. Now I am waiting on insurance to approve the hyper-baric oxygen chamber and I pray that it works and does what many says it will do. It is putting me into a pressurized clear tank that infuses oxygen into my body, they refer to it as going diving, it takes 8 minutes to pressurize the individual then I will spend 90 minutes at the right amount of oxygen then 8 minutes to depressurize. If my ears do not pop then I will have to have tubes put in while I undergo the proceedure and I have to stay committed for daily dives for up to 3 months. My surgeon told me that they will know within a week if it will actually work. Sorry if I jumped around. I know I got to rambling away on you.
My mom goes to all of my appointments with me and she always tells me that she does not think she could endure all that I have had to especially when it comes to the exams and how painful they can be. The poor nurse just cringes when she sees what the doctor is doing and I tell everyone it will be ok and I will be ok. My doctors always tell me I am tough. The way I look at it is I have not had this or that done before so I do not know what to expect until it comes. I have learned to double up on pain meds an hour before the vaginal exams:) That helps a lot but the last few I have been brought to tears and that gasping that happens because it hurts and it does hurts there is no denying that, but in that very moment I remember that I have my life and there is no cancer today that the doctors know about. We will continue to fight everyday for a healthy and long life for each of us cancer survivors:) I am so looking forward to feeling well enough to actually go volunteer my time visiting with other women that have been diagnosed with cancer and face a similar surgery as I have. Melin
Weezie, I have 4 tShirts for you. They are going out in tomorrows mail. If any don't fit or you want a different style, size, etc. Just ship them back and I am happy to swap them out. I want to make sure you are happy. ;-) And yes, where is that glass of wine?!
would i be correct in that 4 shirts are my total order - 2 steel with black, 2 white with teal, long caps, - paid $40, owe you $40 right? 1-2XL white, 1 2XL steel in MENS. 1-2XL white, 1 2XL steel in WOMENS. Jill, I'm starting to laugh like hell here. I'm loosing it too. IF THAT'S CORRECT I WILL PAY THE BALANCE OF $40.00 VIA same method but under DONATE (PAYPAL). Don't worry about the freebie, i'm sure someone else can use it. You are too kind as it is, so give it to a patient at the hospital on my behalf. Love Weezie, atleast I think that's still my name. lol
ok i went into paypal and orderd a 2XL white with teal, the one you are sending me along with the steel one that i paid for this morning. don't fill the order i just did cause you are sending it to me and i couldn't pay for it without placing an order? or i guess i should have gone to donate and done it that way, oh well, just ignore this recent order cause i want what you have arranged. you should have notice of 2 - $20.00 payments through visa , i guess????
I will wait on the nano sleeves and send you the full short sleeve when they come in. I like those better too. I will ship out the three shirts I have now today. Can you send me $40 for the 2 white shirts. You can send me the money via the "Donate" link up on the top of the page. That should be easier then trying to purchase the shirts online. BFC makes about $10 a shirt plus it helps spread the word so I love when people buy them. xooxox, Jill
Hey Sweetie! Hope you are having a wonderful Monday. I received your order for the last light steel T with black print. I will send that out today. Here is what I have for the others. Light steel with teal print I have the "nano" sleeve. Did you want those? They are the shorter cap sleeves? If not I have just reorder the regular short sleeves. Also you wanted women's? or men's? I have the two white with teal print in either men's or women's. And the light steel with black print was ordered last night. ;-) Let me know what you think.
Weezie, I have some new lightsteel tShirts with teal print. Just got them in. I messed up and order some with a "nano" sleeve. So those sort of half short sleeves. Did you want one of those. I had made a note but I didn't write down if I was giving you a free one from one of the giveaways or if you wanted to buy one. Either way take a look at the store and see if we have what you want. If not, let me know and I am going to place another order tomorrow. ;-) Sorry for the long delay.
Hi Weezie, It's been very nice to see you around various blogs lately. Thank you for your kind words on my recent posts. I like your avatar; it's whimsical, so you must be as well. (I also like tea). Love to you, Andrea
You are too funny, woman! You left out the afternoon tea and scones! Have a good day. Ta ta for now! Love, Martha
Hi Weezie! I'll be thinking of you on the 28th. I just know you'll get all good news, then you can hop on that plane to England for the wedding. Perhaps I'll see you there! I've been practicing my curtsy! hehehehe! Love ya-- Martha
Hi Louise, Thanks so much for the birthday wishes, and a belated Happy Birthday to you. I hope you had a chance to sit down and enjoy that glass of wine. It wasn't until this weekend I got to sit down and enjoy a little time for myself and with my wife and kids. I'm glad to be 'healthy again'? (a whole lot better than 2 years ago). It just seems that being back to work and so busy is a love/hate relationship.... nice to pay the bills, but ya tend to wonder if we're making the best use of those 86,400 seconds(nice post). Take care, Hugs and prayers, Greg
Hey My Favorite Weezie! It is so good to hear from you and know that you have recovered from the bug that bit you. My mouth watered when I read that you were making Shepherd's pie--one of my all-time favorites--meat, veggies and mashed potatoes and gravy all in one! That's so nice of you to make things for your friends who are going through a rough time right now. I'm sure they appreciate your kindness, as do I. It's always good to hear from you. Are things getting warmer up your way? It is over 70 degrees here today, so I just HAD to go shopping this afternoon. Came home with a new light fixture to hang over my kitchen table. I hope hubby is in the mood for a little electrical work tonight! lol! Take care my dear friend and please keep in touch. Love-- Martha
Hi Weezie, Hope you are feeling better! The photo I posted is a play on words since I always call the things removed my 'lady parts'. I just so happened to see that photo on-line. If you click on it to enlarge, you'll see it's actually an auto-body parts store...lol xoxo
Check out my last blog and it will catch you up with my progress. Hope you are fairing well.
Hi Weezie-- I'm so sorry to hear you have pneumonia! But thanks for letting me know. I'll try not to worry, but you know me, that's my middle name! I hope the antibiotics will knock it out real quick and you'll feel better soon. Please keep me posted. Get some rest! Hugs-- Martha
Hope you are feeling better, Weezie! Yay for the $2 prescription! Hugs-- Martha
Hi Weezie-- I appreciate your lovely comments so very much, especially considering you took time out from having the flu to write them! :( I'm so sorry to hear you are sick and I hope it's one of those bugs that exits real fast! Other than this, how are you doing? I think about you often and hope that all is well. Now, get yourself some chicken soup, a big box of tissues, a warm blankie and maybe some "plop plop, fizz fizz!" I so hope you feel better real soon! Lots of healing hugs to you (with a mask on of course--hehehe!). Love-- Martha
Weezie, you just won a Tshirt. Private message me your mailing address and size. I might have to do a second order if I don't have your right size, but I promise to get them to you!!
maybe thecancer has dwindled so much that it's lonely. But MS? Really? why couldnt I catch a terminal case of gorgeousness? lol
miss Louweez! don't watch tv? the old lady sitting on top of a huge plateau which she could only have been set down by helicopter. Anyway, it's that little scooter-thing that gives elderly people back their mobility. I just want mine"pimped out", as the cool kids say
thanks for the nice comment lou, I do know that I have something to add. I tend to look at things from a different slant sometimes and I'm careful not to upset with my off-humor. It is toned down for the most part but there are a couple of crazy ladies here that get that side of me :) I love to see when you have been in my house, I too, like to go back and read old posts to better know someone. I havn't seen your contribution to the BC forum yet. Perhaps you can regale us with pet stories, or something wonderful and funny from your childhood. I'm afraid my next post is going to have a political slant, seeing as election day is looming, I'm feeling pretty serious this weekend. Take care. xoxo, Debbie
Weezie, you received an error message somewhere? if so, please let me know more details. I think there may still be some bugs.
Hi Weezie, I really think it is the way the website is set up. The comments just pick up the way that the post was done. If you leave a comment under a post that is in blue...the comment will be blue. If the post is done in black, it picks up the black. Yes, I hate that little square area that is suppose to be the mouse, also. I really think I want to stick with my desktop. I enjoy watching TV and when I sit on my couch I want to just watch TV. I don't multi-task very good anymore...LOL. I have a very good sitting desk chair at my computer that I bought about 17 years ago. It was like the one I had at work. I paid $350.00 for it but it has been well worth the money. That is pretty cheap for as long as it has lasted and it is still in good shape. Have a good night, my friend. Love you, Joyce In NC
Oh, I meant to tell you that the blue color only shows up on posts. The color will only show up on comments when the post was done in blue. Otherwise, the comments come out in small bold black letters. I haven't been able to figure out why it is like that????
Hi Weezie, Yes, I am very blessed. It is nice living with John and Shirley and they are very good to me. I have a large room at the end of the house with a private entrance. I do have to go through the house to use the bathroom but I have a portable potty chair in my room if I need it. I can close the door to my room and feel like I have my own place but yet I know they are just on the other side of the wall if I need them. Being around Shawn and Tyler everyday is very nice. Shawn is so sweet and good to me. He gets very upset if I even mention moving. He looked after me when I was so sick in June and July. I am so very proud of him. Shirley has a laptop and loves it. She has tried to get me to get one but I really don't like to use them. I like my regular keyboard and my mouse. I guess that is because it is what I have used all these years but it seems that I can type faster on my regular keyboard. I might try one ... I don't know. Talk to you later. Have a great day. Love, Joyce In NC
Hi Weezie, (sorry I misspelled it yesterday...lol) Shawn and Tyler do adore each other. I hope that will continue as they get older. Shawn is a lot of help in looking after Tyler. I can't do much looking after him because he is so active. My daughter, Shirley, is office manager for Letchworth Funeral Home here in town. My son-in-law's mother and sister look after Tyler during the day. My late son, Carl, was 12 when my twins, Shirley and Cheryl were born. He was a lot of help when he wasn't in school, also. He looked after Shirley and I looked after Cheryl (my husband seemed to be always working). When I was born I had a sister 20, a brother 17 and a sister 10. My sister that was 10 watched me for Mama a lot. As I got older I got irritated at her because she was always telling me what I could and couldn't do but I still loved her. She is the only one of my family living now except for nieces and nephews. It is a beautiful Fall day here today. Temps in the 50's. That seems so nice. It was in the 90's all through September. Take care, my friend, and I will talk to you later. Love, hugs and prayers, Joyce In NC
Hi Wheezie, It is good to hear from you. I am sorry I haven't been on here much lately. The new meds are helping me to feel better but I still get tired so easily and I have good days and bad days. I just can't seem to sit at the computer for long periods of time like I did before. My old computer is heating up and is so slow at times until I just get disgusted and quit. I am going to try to buy a new one next year. It seems by the time I do my Bible reading and prayers, walk on the treadmill, fix my breakfast and take my meds the morning is about gone. I try to still do everything for myself and I seem to be so slow at it until the day runs out. I pick my 12 year old grandson, Shawn, up from school at 2:45 PM, then come back, look at General Hospital, wash up the dishes I have used and warm my plate of food from the freezer. I cook for myself every 8 days (unsalted food), put my food in sectional plates in the freezer and then they are ready to be warmed at dinner. My baby grandson, Tyler, just turned 1 year old on September 25. Shawn's birthday was on September 21 so my daughter, Shirley, had a big birthday party for both of them at the Fire Dept. My daughter, Cheryl, and her 2 children, Rob (age 10) and Hailey (age 4), came visiting from Florida. That weekend was the best weekend that I have had in a long time but it has taken me a week to get rested up from it...LOL. You have to put this at the beginning each time you do a new post ... after that last b to make it work)... When I do a new post I go to the control panel at the top right of the screen, click on edit post, then click on the last post I did and copy the above and then just paste it at the beginning of each new post. I hope that helps. I will try to get back on a little more often. Hopefully, I can. Take care and I will talk to you later. I pray for everyone on here every morning and all of you are always in my thoughts and prayers. Love, hugs, prayers and blessings, Joyce
Hi Weezie! My, you've been a very busy girl this morning--hehehe! Thanks for all the comments, hugs, prayers, kisses, etc., etc.! You've made my day! Sorry your skies are cloudy up there in Toronto. We are enjoying a beautiful day with temps in the high 60's--a beautiful day for a cruise in the convertible, which we are about to do. I hope your clouds part and the sun shines brightly on you real soon! Thanks for being such a big supporter to me. I love you, my dear friend! Hugs-- Martha
Dear Weezie. You summed it up perfectly. The ca. is way back on simmer & I pray it stays there. This is such a joyous time that can only be won out by this baby's birth. Such an uplifting & sweet diversion. Hugs t y, Patty
Good Afternoon Weez! Just wanted to acknowledge and thank you for your support! xoxo, Debbie
Weezie, you are so sweet. Here is the info on where to donate. There is a paypal link on there too. Thanks for all your help. If you can't donate, no worries. I built this for everyone and wanted it to be free. http://www.blogforacure.com/frontend/pages/donate.php
Hey Weezie, thanks for the post! Quitting smoking is a major accomplishment... good for you. Its been two years, pat yourself on the back and think of something else you can do to make your life richer and fuller! When I quit smoking i remember it was such a relief to not have to "sneak" cigarettes from my daughter and friends (this is a really healthy community). It made me start living life with more freedom and that is what got me into my yoga practice. I began living my truth....what a blessing. Everytime we give something up, we get something in return. Not a bad deal! Tell you sis I say "hi." Nova
Hi Weezie, I was so happy to see your kind comment on my blog today. How are you, really? I always appreciate your snarky comments; snark is a survival mechanism, in my opinion. Furthermore, the health "care" system in the U.S. makes me furious. Health care is a basic human right, but here in the U.S. it is a privilege. I am envious of those of you in Canada and the U.K. Take care of yourself.Let us know what happens with your upcoming tests. Love, Andrea
Hey there beautiful! You and I have not been properly introduced but I'm sure it will only be a matter of time. :) I have awful bouts of insomnia due to loss of my employment, due to cancer. Apparently, chemo brain isn't worker-friendly. Long story, different day. So I'm up all night and I have clicked my way all over this place. I read on and on. Funny thing, no matter where I am, when I read a response that I like or I hear my own words there on the page, I look down and there you are. You are a delight to read and your wisdom is sprinkled with funny. Just the way I like it. That's all, just wanted you to know. We can talk about cancer another time. as always, xoxo, Debbie
Weezie, Here is our link to the twitter page: http://twitter.com/BlogForaCure A poster of that would be cool. Not sure how we would do that. I will put this one on the wish list since I don't know how to do it right away. Might be cool to do a post of everyone on BFC too. hum....
Thank you so much Weezie. I know how lucky I am and I also know that I will be stronger for this. I guess I'm a little antsy about finishing this up and starting my life...I've not really lived and appreciated life but believe me, I will after this. I promise you. Peace...
Dear Sweet Weezie, Yeah, I got service. I better type quickly. Heck, I make enough type-o's typing slow. I am so happy you were able to have some "fun time", Happy Anniversary!!!! Yeah, I'm starting to think as well that everyone just has too much going on to even think about meeting. I was really hoping it could happen. Laura's BF has accepted a job in Chicago and since she has graduated grad school there is not a job to be found so she has decided to move to Chicago with him. I will never try to hold her back but to be honest I am in a panic. What will I do? She will be more than 5 hours from me? He will be moving in two weeks and her lease is not up until Sept., then she will move as well. I am hoping (not mean) that he gets up there doesn't like it and then a great University calls Laura to teach locally. Then, he comes back to his job that he has now in St. Louis. Am I a dreamer or what????? She does SO much to help me. She tries to make everything SO Special for me. Maybe she will have to get it out of her system like when she moved to Fl. for one semester. But, I was so much better at that time. After much thought, unless something greatly changes I am staying in my home. If I have to get help, then that is what I will do. But, I have never rented or been told what to do. It's difficult for me being in the hospital. Heck, if I can't sleep and have a taste for lemons, I'll go to ther fridge and slice me some. (BTW, a little known secret I crave & eat lemons like some crave chocolate). And, I have Maggie, I could never give her up unless it was a forced situation. All I can say is that I can only take this one day at a time. Also. no I do not have a clue as to how to hear Mac's Sermons. I wish I could listen to them as well. I'll be fine, I just have to think of this as a speed bump. You are always in my thoughts & prayers. Be Well, Patty
Hi Weezie, In reading your comments about the drug companies, etc. Even my Oncologist is blown away by this one. The new drug that I get it 2 weeks at a time is $4,444.52, another drug that must go with it that I get it in monthly supplies is $9.099.00. The eye drops they have me on which so far I do not have any answers without more tests but they are 1.5 ML and are $329.00 per bottle. I am using about 2 bottles per week. The above figures do not include my other medsfor the heart defect, osteoporosis,seizures, or nausea. Personally, I do not know a living sould that had this kind of cash to put out on a monthly basis. So, just to live my life with the meds that are needed are now over $30,000.00 per month. Since I began with the TIA'S, we are in discussion about the need to sell our home of 24 years. The day that Laura came over to find me unresponsive ( the morning of our big plans to see opening night of,"WICKED". It was just a stroke of luck for she came over to cut the grass. Later she told me she was so scared that was the end. It saddens me greatly that she had to experience any and all of what she did. It is in discussion now about an assisted care facility... My, have I gotten that bad this fast? Be Well, Patty P.S. Can you send me the list of the things youo have learned so I can copy it and frame it. I loved it. You are so wise
Hi Weezie, Thank you for your note. I really appreciate it. I seem to be the only one on the NY Times blog who didn't find cancer to be an uplifting experience. And I agree with you 100% -- why are the people with cancer the ones who have to do all the fighting? There has, in fact, been little progress in the last 25 years. That said, cancer is many diseases with many causes; dozens of cures are needed, not just one. I live commuting distance from NIH (National Institutes of Health, the US govt's medical research arm). I know a couple of researchers there, and they really are trying. But scientists are as susceptible to group think as anyone else, and I wonder if scientists are even asking the right questions.I have no love lost on pharmaceutical companies either. But I would think that they would stand to make plenty of money on cancer meds that actually target cancer cells and could essentially turn cancer into a chronic, controlled condition, kind of like the antiretroviral drugs that are used for HIV/AIDS, or insulin for diabetes. The longer cancer patients stick around the more meds they will buy, so there should be plenty of profits to go round. Someday (sooner rather than later, I hope), burning people with radiation and sending poison through their veins will seem as primitive as leeches. In the meantime ... yeah. Cancer is still a mysterious disease and people have magical thinking about it. Although there is a mind-body connection, cancer patients have the only disease where the patients are supposed to will away their disease.People get blamed, or blame themselves, for not having been properly chipper if their treatment fails; people also get credit (or give themselves credit) for succeeding because they have the right attitude. Sometimes it makes me laugh. Were it only so simple. At least in Canada, health care is a right, not a privilege. In the US, people without insurance who have cancer are diagnosed later, receive less treatment, and (needless to say) die sooner than people with insurance. It's terrible. I don't think health care should be for profit anyway. Why should giant corporations (especially insurance companies) make money on the backs of sick people? Be well, Weezie. Andrea
Thanks Weezie! I need all the positive reinforcement I can get, so I appreciate your comments so much! I also want to wish you the very best on your follow-ups. These things just continue to scare the bejeebers out of me, especially when there are little things noted. We will get through this though, I know we will! I am going to try and chill all weekend--I hope you do the same! Love-- Martha
Weezie, I've not heard from Patty, although I've emailed. I will try calling. When she disappears I worry that she is in the hospital again. Be well. Andrea
Weezie, yeah I feel like a bald onion. I had my chemo yesterday and the white blood cell shot today. So far just a dull headache. You are so strong and sharing with everyone! I wish I could meet you some day! Thanks for all your comments...I pray for you nightly.
Thanks, Weezie, for your kind remarks. I was wondering why you aren't surprised at the oncologists fast and furious treatment. I think it was because I had 13 of 24 lymph nodes that were cancerous. I hope that's the reason. I just know that I will have to take one step at a time. Probably won't be taking any giant steps for awhile. You have such a large support group. You are truly a caring person and I appreciate your help. Peace...
Weezie, I posted a blog about the surgery last week. Check it out if you haven't already seen it. I'm much less sore now and the butterfly stitches are beginning to pull. The surgeon removed 24 lymph nodes and 13 were cancerous. Not the odds we had hoped for, but we're still fightin', aren't we?
Weezie, happy early birthday!
Thanks for the good laugh,keep them coming they don't seem to have a big sense of humor here, I guess they don't mine. email@example.com Karma is tough, oh well. Thanks,Patty
Patti; Send me your email address so I can forward some things to you. Weezie
Hi Weezie, Thanks for your note -- especially using the term "new normal" -- I hadn't thought about cancer like that, but you're right because it never goes away. I should have been more specific about Patty's post. It was not private (it's in blue), and is found under my last post ("Motivation: Got Up and Went"). The longer I'm on this blog the more truly amazing people I encounter. Yes -- it gets harder to keep up too. Take care, Andrea
Weezie, yes, I will have Dani do that for me. She and Tyson, as well as my son-in-law and daughter-in-law are so supportive. I'm just ready to start the next step. Thanks for all your good wishes.
Thanks so much Weezie, you are a very special person. Peace to you.
You are absolutely right, weezie! We must all live life to the fullest and I have finally realized that! Had the PET scan and ultrasound today. No news yet. Ironically, my sign zodiac is Cancer! (July 3rd) Take care!
hey weezie, thanks for telling me about your sis's yoga studio...sounds great. I'll definately look it up and yes, maybe we'll meet one day. that would be awesome. How are you doing these days?
Hi Weezie Thanks for your comments - you always make me smile!! Hugs Anna
Hi Louise, Thank you for your great comments of support. The SIR spheres (radioactive beads) are delivered via cath. It is done in three stages over a six week period of time. I will be sedated (not for the entire six weeks though). Love, and God Bless! Larry
Weezie-- Your comments made me laugh so hard, I almost fell off the chair--but I decided once was enough! Sending you loving thoughts and wishes for the best of everything in 2010. May it be a very healthy and happy year for you! Hugs-- Martha
Thank you Weezie for your support, it means a lot, I hope your doing better.
Vitamin d3 is animal based like what your body makes with sunshine d2 comes from plants and is not ready for use right the body has process to d3 to use it On average the body just store for the when there is shortage in your system and it has to do the extra work to use Plant based d2 is a byproduct in food processing and cheap scam companys sell it knowing all the while that is second rate There is no plain d it is one or the other d2 or d3 If you are older than 65 then you should be doing 10,000 iu every 3 days becuse your thalmus is smaller now Toxic amounts are 100 times this dose. It intersting that canada health now says on thier web site that is impossible to enough d3 in our climate without suppliments
Weezie-- It's so good to hear from you, as you have been absent of late. I hope you are doing well and I wanted to wish you the very best with your upcoming follow-ups. They really freak me out, but I know you and I are both going to ace it! Thanks for the encouragement! Hugs-- Martha
Weezie-- I laughed when I read the comment you made on my pic of my race in 1991. That was many years ago, and yes, that is me! As for the "cutie" with his arm around me, that's my next door neighbor! (Don't tell my husband!) Actually, my hubby took the picture! Hope you are doing well. Love ya-- Martha
Weezie-- You are so sweet! Thank you for all the kind words--it means so much to me to have your support and encouragement! You were one of the first people on BFAC to reach out to me and I am so appreciative of that! May God Bless You! Martha
Hi Weezie-- You asked about the poster on my blog who left the upsetting comment. Those comments have been deleted by Jill, along with this person's account. So, there is no longer a record of this. All I can tell you is that it was someone whose user name was apricotsfromgod. Hopefully, we've heard the last from them. Thanks so much for your support--it means so much to me. I hope you are doing well and always look forward to hearing from you. Take care. Martha
hi weezie,thanks for popping in, i havent checked my blog in a while.seems so much to keep up with!! you are such an endearing person, easy to tell by your warm writing. hope to get to write more with you in time. i live in missouri. but getting treatment and surgery in houston , tx. md anderson,,actually this thursday on lungs. i love your attitude too,,,,keep going!!! talk to you soon. love, annette
Hi Weezie, The bikers up hear often due runs for cancer. We have many a fund raises for cancer and toys toys for tots...We keep ourselves busy and try to stay involved load afairs...We ride with pride..Ric
Hi Weezie, Unfortunately, some of the supplements are in gel-cap form. Crushing and drinking the solid tablets never really appealed to me because I think it would feel like sawdust going down. My wife and I have been separated a couple of times during our 16 year marriage. It was going south just before I was diagnosed. Now, at this point...She's hanging-in there and giving me as much moral support as can be mustered under the circumstances. There are times that are definitely problematic. But, I stay focused on the main priorities. I cannot waste any more time ringing my hands and asking "why can't things be better between us?"...so...I do my thing to survive the best way I can under the circumstances. Don't get me wrong...I know she cares. But, as a defense mechanism, she puts up a cold exterior, and appears to be very curt and stressed at times. Some people will make a small everyday problem seem earth-shattering so they don't have to deal with larger issues facing them. So...whatever gets you through the night... Love, and God Bless, Larry
Hi Weezie, You're absolutely right...my oncologist would strangle me as well if he knew of all the supplements I take on a daily basis. Since the cancer has spread to my liver, and the prognosis is not great no matter what treatment is applied by the oncologist, I decided to be more pro-active and take command of my situation. My stamina is great, as well as my white and red levels. My liver function has improved tremendously. That said, I realize there will be no way to completely eradicate the cancer from my liver unless I receive a transplant...of which I am not a candidate. At this juncture, I could have three months, or I could have twelve to twenty (next CT Scan is in one week). At this point, I have to be in the driver's seat. I know that is very arrogant of me. Swallowing the supplements requires a tall glass of pomagrante and blueberry juice watered down with seltzer. It takes me about fifteen minutes every morning while I watch the news. It's almost automatic at this point, and before you know it...I look down, and all of the supplements are gone. Then, I get my daughter ready for school, and I go to work. I want to maintain as much normalcy as possible. Love, and God Bless, Larry
Dearest Weezie, You are so sweet and I have dreams to come and have coffee or tea with you some day and chat. I believe Gemma is very happy and would want us to be also. I still weep daily, and then I picture her saying "Mum, I'm okay. Don't cry." It gets me from here to there. Her sister Julia is so far away but seems to be dealing with it as best she can. I speak and text Zac on occasion. I tell him he is always welcome here and I hope he will meet someone wonderful one day and live his life as best he can. Zac is such a good young man. He was with Gemma every step of the way and never ran from all the scary things that happened. Theodore, my grand-dog, just turned a year old. Jill said she would help me post some pictures as I am so behind the times. I kept Gemma's cell phone because her beautiful voice is still on when you call and it is also a camera phone. I finally am ready to lay her to rest in the cemetery. I have her here with me in a beautiful angel urn because I could not part with her. Now I feel her all around me no matter where I go so I made arrangements to bury her ashes once her sister comes home for summer. I promise to get pictures posted soon. Love and best wishes to you. Nancy
Joyce, the private emails are already set up I think. Just write to Jill and she will explain it. The Paul and lisa I mentioned, this is their blog name: Paul Daigrepont
Hi Weezie, Thanks for your kind words of wisdom. You are right about everything you said. I know that but days like birthdays are just harder sometimes and you just feel the need to express your feelings to someone other than family. I was blessed to have Carl for 39 years. My best friend lost her first baby when he was less than 1 year old and I saw how hard it was for her. When I was 16 I lost my best friend (also 16) to complications from polio. Thank God they found a vaccine for that. It is a shame they can't find a cure for this terrible cancer. I won't see my entire family at Thanksgiving but I am thankful for the ones I can be with. My daughter that lived in Myrtle Beach, SC, moved to Miami, FL, on March 1 and I won't see her or her family. Yes, my reading glasses has helped so much. It is hard to type and hold a spy glass. I hope you are doing well. Take care. Hugs, Joyce
Thank you so much for you kind words on Gaile's memorial page. It helped me to read them. ;-)
Hi Weezie-- Thanks so much for your kind words of support. I appreciate it so very much! I hope you are doing well--I think of you often. Take care. Martha
Louise, I hope you are doing well. I hope I wasn't being too nosey asking about your husband's stress test. If I was, forgive me. I was just concerned because my son died at 39 from a heart attack and my late husband had his first heart attack at the age of 53. Take care. Hugs, Joyce
Hello, my friend. You have been on my mind for quite a while but I just haven’t gotten back on here very often. First, what did your husband find out about his stress test? I understand about his boring diet. I have been on a low fat, NO SALT diet for last 2 years since my husband died. He was suppose to be on one but he never could stand to eat food without salt. It doesn’t bother me as much now as it did but I have had to give up quite a few foods that I really loved. Since I don’t need my prescription glasses any longer for seeing at a distance, I bought a +3.00 pair of reading glasses from Wal-Mart and that works so much better than the magnifying glass. It is hard to type and hold the magnifying glass. I hope you are doing good. Take care. Love and hugs, Joyce
Hi Weezie, Thank you for your kind words of support and encouragement. My thoughts and prayers are with you. Larry
Weezie - The private emails should be finished later this week. My programmer has finals on Monday and will start working on it sometime after that. I will let you know when it is complete and how it will work. I left a comment on Gaile's page yesterday. I really want to hear from her and nervous things are not going well and that is why we haven't heard from her.
I just told my programmer to start working on the project for us to send private emails/comments to each other. Hope to test it next week. Keep your requests for improving the system coming. Slowly and surely I hope to make it happen. ;-)
Jill; funny thing I tried to donate some cash by visa but it won't take my province or postal code, only U.S. states. I think you need to update that so if people outside USA want to help, we can. I don't like Paypal. Thanks Weezie
There is no way right now to allow people to send private messages. But I think that is a great idea and want to work on that next. And you just used the new feature by commenting on my bio page instead of a blog page. Makes sense? Thanks, Jill
Weezie, Thanks for your sweet remarks. Adam is still at MacDill AFB, he is working on getting his life in order whether it be in Tampa or Alabama. He will do whatever it takes to survive. His children come first. I told him i just wanted him to be happy and content with his life. We can visit him down there anytime. He still talks to Celeni form time to time too. I think of her often too, hoping she is doing ok. I went to get flowers from my sister in laws grave a few weeks ago and just stopped by Wesleys grave to view his monument. It is really beautiful with the guitars and music icons that say "will always be remembered." Adam designed this himself and did a great job in honor of his Dad. Blessings to you, may God be with you always, Robin
oops, I was signed in under the admin user. That was me above. ;-)
Louise - This is where the comments can be posted. It was requested by a number of people to be able to contact someone who hasn't posted a blog posting yet. Since the old way you could only comment on a blog if someone had actually posted something. Sometimes we get people who sign up and post comments on other blogs, but there is no way to comment back on that persons blog until they actually write something on their blog. Hope this makes sense. Another thing I would like to set up is private emails to someone. Do you think this would be helpful too? Thanks, Much Love, Jill
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