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Vital Info


Ruth (ruthkenn)


November 7, 2009


Massachusetts


July 3, 1966

Cancer Info


Anal Cancer


squamous cell carcinoma


Sept. 22, 2009


Stage 3A


03


Yes


Re-excision Surgery


yes


Fluorouracil


It has stolen my vision of my future.


That it can affect you even when you feel completely healthy and think you are doing everything right to safeguard your health.


Send positive energy and compassion.


none at this point.


no


IMRT using PET Scan and CT Scan results. Scheduled to being 11/9/09.
IMRT went smoothly at first. As treatment progressed, I started to see signs of burning along my bikini line and painful itching on by anus. Delays in IMRT have been caused by low blood counts (low platelets).




Biography

I am a stay at home mom of 3 great kids ages 9, 5, and 2. I love to ski, exercise, travel, garden, and learn about new things. I never in a million years saw this coming at me and am shocked beyond belief at the turn my life has taken.

Cancer Symptoms

occasional rectal bleeding

Surgery Description, Dates & Side Effects

anal excision Oct. 5, 2009, no side effects other than minor discomfort

Radiation Description, Dates & Side Effects

IMRT using PET Scan and CT Scan results. Scheduled to being 11/9/09.
IMRT went smoothly at first. As treatment progressed, I started to see signs of burning along my bikini line and painful itching on by anus. Delays in IMRT have been caused by low blood counts (low platelets).

Chemotherapy Description, Dates & Side Effects

Mitomycin and 5-FU on continuous drip using a PICC line. 4 day drip week 1, and second 4 day drip week 5. Scheduled to begin 11/9/09. First chemo round gave me terrible mouth sores and I was extremely dehydrated, to the point of needing hospitalization. 2nd chemo round went better due to daily scheduled “hydration” sessions at oncology. No dehydration or mouth sores, but I am extremely fatigued and all my blood counts are VERY low.




Comments:

Ruth, Thank you so much for your comments. I appreciate the good vibes and can feel them. Stay well. Mark

Hi Ruth and thanks for your commens and suggestion.
Underwear in the freezer” I’ve never heard of but sounds intriguing! Actually made me chuckle.
Hope you are well too,

DJ

Hi Ruth – have been keeping an eye out for you and checking in to see how you are doing . . . sending love. Hope things ok. xx

Hi Ruth – Here’s to good scans and a wonderful birthday coming up. Cheers! Cherie

Hi Ruth—
I’m sure you’ll make the most of your day and the weekend! I hope the barium goes down okay!

Hugs—
Martha

Hi Ruth – Yes, the radiation oncologist did make me feel better, but as in all things, I start thinking well maybe he is just giving me false hope. I hate it when my mind starts doing that. I try to turn it off by focusing on God, but it comes back again. Anyway, I’m having a good weekend, went to a graduation party last night and going over to my sister-in-law’s for dinner. So, 2 nights I didn’t have to plan a meal or cook it! Yeah! And I use to like to cook before all this happened, now I could care less.
Enjoy your week ahead. Hugs – Cherie

Hi Ruth – Thanks for your encouragement and congratulations on your 5 month mark with good results! Did you ever talk to your doctor about your biopsy and why she did one on you? Just curious as to what she had to say.

Thank you for your prayers and best wishes, someone must be looking after me up there. I hope you are feeling better, unfortunately tiredness and fatigue are the normal side effects of radiation, they do lesson over time.

John

Hi Ruth – Thanks for your comment on my happy news. Hope you are having a nice Memorial Day. Take care – Cherie

Hi Ruth – Thanks for your post. As a routine, do we need to have our tonsils checked for HPV, too? Not sure how they would do that and it doesn’t sound like it would be pleasant. Or do the HPV cells stay in the area they first attacked? Is it worthwhile to know what type of HPV I have? Thanks again for all your knowledge and support. Cherie

Hi Ruth – Your answer to my question, was utterly depressing to me. You seem to know alot about your particular cancer and anal cancer in general. I’m afraid I have taken the ostrich approach and have buried my head in the sand and don’t want to know anything because it just freaks me out and I want to be in denial. Did you doctor give you all the particulars about your cancer or did you have to ask him? I didn’t know that there are different strains called P something. Not sure I want to know what mine is. How do you deal with knowing all this info? Ignorance is bliss in my mind. I am like Nancy, the other anal cancer blogger who is always worried and full of anxiety and depression. How do you keep it together? Sorry for going on and on, but I’m plain scared and depressed. Cherie

Thanks Ruth, for your kind posting. I don’t know how you got through treatment with 3 young kids. I have only one child who is almost 20 and she lives at home and goes to a private university that is close by. I find that I miss her every moment she is gone and want to just hug her all the time. I’m not sure I am totally comfortable with the social worker who is counseling me. I am a born again Christian and she is very much a Hindu and is throwing in eastern religious phrases. She is very sweet and is trying to tailor her words to my frame of reference, but it still is an odd fit. Hope you are doing well and its good to know that none of us are alone in this battle. Cherie

Hi Ruth!
Thanks for posting. I am also in favor of the reform!! I have worked in insurance for 20 years and if you mandate that everyone buys insurance…then you spread the risk over millions of people…then we are able to insure everyone and pay for it..this is the whole concept of insurance….now I realize this is a little simplistic as insurance ccompanies ARE greedy ..hopefully as this process unfolds there will be built in regulations (that were done away with in the banking industry as the people in charge decided “we don’t any stinkin regulations”)
and these regualtions will keep in check possible abuses….Ok that is my political statement!!

Did I tell you I am an eternal optimist?? Anyway thank you for caring You are the best!! thanks for your good wishes!! Love, lori in AZ

Your welcome!

Hugs—
Martha

hi, ruth. just wanted to let you know that i looked at the you tube video of your son. he is doing so well! i have never been on skis and probably never will, as i am sure i would kill myself somehow on those things. i would run into a tree or something. so nice to see your little man so energetic and happy. does my heart good! God bless his little heart. hugs to you and your entire family. remember… life really is good. maybe not perfect… but good. debby

Hi Ruth,
I love salads and fresh veggies. I really, really miss them. So, I’m encouraged by your post and know that I, too will be eating raw fruits and veggies again, soon.

Theresa

ruth…thanks for your comments…and you made me laugh…ie not having to shave for your florida trip! hehehe

I am still waiting for my gross (ethnic men over 40) ear hair to fall out so I won’t have to pluck anymore…but still plucking at this point!

d …hugs!

Ruth – hello again and thank you for your message. I have read through some of your posts and appreciate the info and link re HPV - this is something for me to explore.

I am in awe of you being up and exercising already – I would like a little more capacity to keep myself busily occupied but here I am at 18.00 and almost ready for bed. Patience – a virtue to cultivate!

I saw the picture of your handsome dog Zach – I can imagine how much you must miss him. I have a dog of similar colour but a much smaller model (odd mix of maybe corgi and jack russell and ?) and he is a great companion and comfort (as are my cats).

Your children are at an age where they will be keeping you very busy – do you have good help and support or are you really superwoman?!

I was touched by what you wrote re the menopause and am with you even though I am older and would have been very unlikely to conceive the loss has hit me hard. A dear friend – a man funnily enough – summed it up for me and offered that perhaps it was a symbolic loss which hurt – that maybe there was a little hope there in those ovaries that more life might issue forth – and he was right – I would have liked to have had more children (I have one son) and perhaps somewhere I still believed I would. Noone else really seems to have got it!

Here’s hoping you are having an emotionally robust day as you continue in your recovery. With best wishes, janet

Hi Ruth
thanks for the suggestion. I have seen the name of that cream on this blog and am asking for a prescription when I see my oncologist next week.
In the meantime I will pick something up at the drug store.
In the meantime I think its immodium time..
take care
Marcia

Hi Ruth—
I suggested it because you had commented that there were not many places on the internet for support for anal cancer. It’s a good group of people (and we have some crossovers, as you will see if you get on there). I just thought it would be an additional source of support for you. I hope you’ll join!

Martha

Hi Ruth,

I don’t know how I missed your post but I am glad I found it now. I am sorry that you have to be here under these circumstances. I am also an “Anal Cancer Survivor”. This treatment is rough but you will make it through. We are all here to support you. Please feel free to ask questions, vent or whatever you need. I will keep you in my thoughts and prayers. Take care.

Nancy



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