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BiographyI am a stay at home mom of 3 great kids ages 9, 5, and 2. I love to ski, exercise, travel, garden, and learn about new things. I never in a million years saw this coming at me and am shocked beyond belief at the turn my life has taken. Cancer Symptomsoccasional rectal bleeding Surgery Description, Dates & Side Effectsanal excision Oct. 5, 2009, no side effects other than minor discomfort Radiation Description, Dates & Side EffectsIMRT using PET Scan and CT Scan results. Scheduled to being 11/9/09.IMRT went smoothly at first. As treatment progressed, I started to see signs of burning along my bikini line and painful itching on by anus. Delays in IMRT have been caused by low blood counts (low platelets). In a perfect world, IMRT would have finished 12/17, and now will not be done until after Christmas, God willing. Chemotherapy Description, Dates & Side EffectsMitomycin and 5-FU on continuous drip using a PICC line. 4 day drip week 1, and second 4 day drip week 5. Scheduled to begin 11/9/09. First chemo round gave me terrible mouth sores and I was extremely dehydrated, to the point of needing hospitalization. 2nd chemo round went better due to daily scheduled “hydration” sessions at oncology. No dehydration or mouth sores, but I am extremely fatigued and all my blood counts are VERY low. Comments: |
hi, ruth. just wanted to let you know that i looked at the you tube video of your son. he is doing so well! i have never been on skis and probably never will, as i am sure i would kill myself somehow on those things. i would run into a tree or something. so nice to see your little man so energetic and happy. does my heart good! God bless his little heart. hugs to you and your entire family. remember… life really is good. maybe not perfect… but good. debby
Hi Ruth,
I love salads and fresh veggies. I really, really miss them. So, I’m encouraged by your post and know that I, too will be eating raw fruits and veggies again, soon.
Theresa
ruth…thanks for your comments…and you made me laugh…ie not having to shave for your florida trip! hehehe
I am still waiting for my gross (ethnic men over 40) ear hair to fall out so I won’t have to pluck anymore…but still plucking at this point!
d …hugs!
Ruth – hello again and thank you for your message. I have read through some of your posts and appreciate the info and link re HPV - this is something for me to explore.
I am in awe of you being up and exercising already – I would like a little more capacity to keep myself busily occupied but here I am at 18.00 and almost ready for bed. Patience – a virtue to cultivate!
I saw the picture of your handsome dog Zach – I can imagine how much you must miss him. I have a dog of similar colour but a much smaller model (odd mix of maybe corgi and jack russell and ?) and he is a great companion and comfort (as are my cats).
Your children are at an age where they will be keeping you very busy – do you have good help and support or are you really superwoman?!
I was touched by what you wrote re the menopause and am with you even though I am older and would have been very unlikely to conceive the loss has hit me hard. A dear friend – a man funnily enough – summed it up for me and offered that perhaps it was a symbolic loss which hurt – that maybe there was a little hope there in those ovaries that more life might issue forth – and he was right – I would have liked to have had more children (I have one son) and perhaps somewhere I still believed I would. Noone else really seems to have got it!
Here’s hoping you are having an emotionally robust day as you continue in your recovery. With best wishes, janet
Hi Ruth
thanks for the suggestion. I have seen the name of that cream on this blog and am asking for a prescription when I see my oncologist next week.
In the meantime I will pick something up at the drug store.
In the meantime I think its immodium time..
take care
Marcia
Hi Ruth—
I suggested it because you had commented that there were not many places on the internet for support for anal cancer. It’s a good group of people (and we have some crossovers, as you will see if you get on there). I just thought it would be an additional source of support for you. I hope you’ll join!
Martha
Hi Ruth,
I don’t know how I missed your post but I am glad I found it now. I am sorry that you have to be here under these circumstances. I am also an “Anal Cancer Survivor”. This treatment is rough but you will make it through. We are all here to support you. Please feel free to ask questions, vent or whatever you need. I will keep you in my thoughts and prayers. Take care.
Nancy