Patice,
You need to post
Anna

hi cant find your email address please
send it to me i miss hearing from you
thanks friends from wisconsin
diane wagner
at rlwcpa@execpc.com

Hi Trice,
Thanks for the nice words. You should definitely wait on the new clothes. I made the mistake of buying two expensive outfits and then lost 30 more pounds! Had to give them away. You will find that even when you get some taste back, its hard to eat enough to gain weight. It will be a few years till your appetite gets back to the way it was. I am now weighing myself 5 times a day to make sure I stay on top of my weight this time and not let it get out of control. As long as you weigh yourself you know where you stand. I always found when I gained alot of weight I did not realize it – now I do. Two pounds up is gone next week!!

Hugs
Anna

trice…
sorry to hear the discomfort…
my guess it is due to the trush…i also had a period of time {after treatments} when my mouth again started to be coated with heavy mucus…it effected my taste/appetite…i also had increased pain in my throat area {small little cuts/open wounds}...it was horrible…i was placed on nystatin…it took some time but thank god it got better..
it was not until about a month ago when it fully ended {that is 6-7 months after the radiation/chemo ended}...up til then my mouth was still sensitive to certain foods {example: chocolate/sugar products}...my mouth felt like i was eating paste…uch !!
hope this is helpful info
hang in there…remember your body is still healing…
dennismcgn

HI Patrice,
Thanks for the warm wishes…Yep went back to my ENT Surgeon today for my 3 week check up since the disection and I was telling him how I was feeling Blue and he asked WHY??? I said bcuz I want to get back into “LIFE” wake up to a cup of coffee, go back to work etc…he said these are all great signs and to HANG IN THERE and to CELEBRATE the Season Bcuz I have a lot to CELEBRATE Those words did it for me. I want this to swing me back into my happy go lucky self..AND YOU TOO Because we are ALL gonna defeat the BEAST!! HAve a wonderful holiday. Stay STRONG! Enjoy..
Love,
Elena Cuomo

hello, miss your lovely comments on the blog, i am in the third week of radiation and only 3 more chemos to go erbitux.. rash on my chin,my neck and especially on the right side where the scare is from the surgery is bad..my mouth is sore had thrush and was on dificuan (spelling) and now they think the sores are just from radiation, i have the magic mouthwash to take before i eat, but that seems to get my stomach-diarrahi- but trade one for the other..no feeding tube and i pray every day that i dont have to get one..have only lost 2 pounds, but i am sure all this will change. i am ascared about the mucus -worried about sleeping at night and it will get caught in my throat and i wont beable to breath..i guess i read too many stories on the internet..otherwise i am still going to grandkids plays at school and out to eat ..i think of you often my e mail address is rlwcpa28@yahoo.com please keep in touch that way, can i have yours too, peace to you
and happy holidays.
diane from wisconsin

Hi Patrice,

I was just checking in with you to see how things are going. how are you feeling? Are things getting better? I had a neck Disecction 3 weeks ago, they took out the remainder of the lump since rads didnt get it all. Doc says He got all The cancer and things are looking good. However, Im in another healing process. Im so sick of being sick. I just want my life back. Have you regained yours?? I need some GOOD stories, Im on a mental roller coaster with all this.
Elena

pat i am so proud of you i wish i was at your stage, just finishing my first week of rad and 2nd chemo of erbitux.. just got the rash on my chin the doctor said to just leave it for now and dont put any thing on it.. i started caphosol yesterday for dry mouth treatment did you use that? i am also on lexapro for my nerves and xanax for when i go get the mask and rad.. my prayers are with you always you were my rock in reading all these blogs.. good luck in all you do
diane w from wisconsin please e mail me at rlwcpa28@yahoo.com

Hello there my cheerful friend, i had my first rad and chemo today (erbitux) i wish all treatments would go like this but i know that after reading all blogs that the hell is yet to come.. got a slight rash on my chin already my doctor said dont put anything on it yet.. i thank you for your support and hope all is fine with you.. i will discuss the feeding tube with doctor on wed. as they dont believe in giving it before you actually need it.. thanks again for your cheerful comments.. i wish i was as far as you in treatments.. your friend in wisconsin diane w

Hi Trice!
Last weekend my husband and I went to a very nice restaurant and I had mint marinated rack of lamb with goat cheese mashed potatoes. It was wonderful! Their cesar salad was nice too. The white wine hurt my mouth however. Its really just hit or miss – what works for me may not work for you. I can’t eat any fruit – it just tastes sour. I know you are looking forward to eating but it will take four months out of treatment before you are healed enough to take on the big leagues. I am taking a zinc tablet every day and I notice a difference in my taste so it is helping. Hang in there! I am rooting for you—Anna

did you go thru the same feeding tube operation as greg? are they all like that?

Hello, wanted to know why they put you on three different chemo drugs, i will only be on erbitux, did you get the rash? how about hair loss? i wish i was at your stage.. i go for chemo once a week for 6 weeks how is yours? we will see on monday if i need a port? what do i expect from chemo, do i just sit on the chair, do i read, do you talk to others, i am so ascared of the unknown can anyone else help me. my blog is diane w