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Linda's Profile PageCancer SymptomsObstruction of bowels, extreme pain-fading in and out Surgery Description, Dates & Side EffectsOpen surgery, removed lymph nodes, resected sigmoid, removed some of small intestine, removed gall bladder, resected liver Chemotherapy Description, Dates & Side EffectsChemo Wed, leave with bag, come back on Fri. Side effects neuropathy, fatigue, nausea, occasional constipation and/or diarhea Comments: |
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Hi, Linda. I too had surgery, Dec 6, started radiation and 5FU pump Jan 24. Into my 2nd week of 5, so far so good. Hope you get to feeling better soon.
I had my port put in outpatient and had the good fortune of being in healthcare and connected with people who knew..chemo nurses..especially are your best resources..wherever you get your chemo they know where to go..who are the best people at putting them in..I had mine put in with little sedation outpatient in an office setting. Great people..great experience..no problems with it ..works everytime they need to access it..we are here whenever you need someone to hear your concerns. We have been there and understand. It feels like you are alone..even with great support like I had..it is happening to you and your body and it is a new experience..can be scarey..this is a wonderful site..people who understand and “get it”. Good luck and will be thinking about you..you are not going through this alone. We are here for you.
Thanks so much Melinda…will be talking w/doc tomorrow (the surgery took a little longer, because there was an emergency surgery that happened…) Looking forward to chatting more. I’m still wondering how they do that with the port…do you get to go home after the initial antinausea medicine is in? Since it’s 46 hours every two weeks, I’m thinking I must be able to go home for some of those hours…......still feel so confused! :(
Well the port is the easiest to get through:) I hope all goes well…I am just getting back from my holiday with good friends of the family. write when you can and ask any questions. There maybe some help under tips, but my treatment was 8 chemo txs of 5-FU and FOLFOX 6 then a month break then had 25 radiation/5-fu pump 24/7, another break for a month and half to allow my body to heal some more started my last chemo cycle of 12 tx of 5-FU and FOLFOX…I was never healed enough from my surgery which took place first before any chemo started so I was never given Avastin. But I got to the other side and still working through chronic pain issues. but doing better now than I have been in a long time:)
All of us totally understand that there are times when u just cannot share with your loved ones, like you can with others that have gone through what you have especially the long route of lots of chemo.
hugs,
Melinda
Thank you so much…have been very tired and not much energy, but will be leaving soon to go to the hospital for more blood tests, ct scans, and learning about ports (not sure if it’s being put in today or tomorrow). Hard to understand some things, and harder still to express my fear at times to my husband (he does NOT want to hear that)....thank God I am here today…will fill in more I promise, and thank you for the note!
Just wanted to let you know that we are here for you! I hope you finish filling out the profile information so we know how best to help you in your journey.
Melinda