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BiographyI have Brain Cancer and I had my first surgery Oct 8th 2008 and my second surgery Sept 23rd 2009. I have a Mixed Oligodendroglioma which I am sure I just spelled wrong. I also have the 1p and 19q in tact so that is not so good for me either. Ever since I had my last surgery I spell and talk not so good so please forgive me. I am working on all of this. I am a 35 year old wife who has a beautiful daughter whom is 7 years old. My husband is a wonderful man who I think has to much to worry about. My first surgery was a lot for my husband but my second surgery went very well! However the man who put me to sleep must have used what I told him not to use because it took him 74 minutes to wake me up and my arms and feet are a mess! Noone told my husband but all my paperwork came to me and it told me the news! This was all done at Johns Hopkins! The doctor however did do a good job I think but I have not seen an MRI to see what he did so I am not sure. I do know that he left tumor in my speech area and tumor above the butterfly where tumor has moved into the right side of my brain. I see a lot of you all have Cancer and I wish you all the best! It is hard to talk with people who have cancer. If anyone would like to talk with me please email me at kjapfehl@yahoo.com Cancer SymptomsSeizures,balance,no driving,no control over my life, and life is just not the same! Surgery Description, Dates & Side EffectsOct 8th 2008 Reading Pa Radiation Description, Dates & Side EffectsNone Chemotherapy Description, Dates & Side EffectsNone Hormone Therapy Description, Dates & Side EffectsNone Bone Marrow Transplant Description, Dates & Side EffectsNone Immune Therapy Description, Dates & Side EffectsNone Fundraising DescriptionCancer fundraising for my daughter! Comments: |
Janet,
Thank you for your wonderful comment on my blog and well wishes:)
Now i feel bad for asking the ‘Y me’ questions! I’m so sorry to hear about your story… But please don’t give up hope yet. I know i’m not much of a positive person myself, but we should always remember that miracles do happen.
My prayer’s are with you always!
Hi Janet,
I am so sorry that you are going through so much. I should not even complain at all. Sloan is a great center from what I read. It is supposed to be one of the best. My medical oncologist did some training there and he is fantastic. I really hope that they can do more for you. I don’t understand why your doctor wants you to sit around and wait for treatment??? if I read that correctly. Please know that I think about you and pray for you. Take care my friend.
hugs
Nancy
Thanks! I sent you a friends request. You will know it’s me, I use the same profile pic on there too.
I’m on Facebook also, what is your link I can request you as FB friend!
I’ve been thinking about you and that was NOT THE NEWS I wanted to hear, I am sure definately not what you or your family anticipatedon hearing. I am so sorry, I am praying Sloan Kettering is going to go all out and offer you a treatment that works well. Steroids most DEFINATLEY SUCK! I am saying massive prayers for you lady! Did the scans show spreading? FUCK CANCER. (Sorry for profanity, I think sometimes God understands it is appropriate and the only way some can accurately express and emotion they are feeling and that is what I am feeling at the moment when I got your message.)
Thank you for your comment. You are still very much a beautiful person, inside and out. And your new dark hair looks beautiful on you. I would never guess it had been another color.
This whole business absolutely sucks, and you don’t deserve any of the bullshit that’s been handed you. I still believe in miracles and think of you often and pray that you receive your miracle. Your husband and daughter are very lucky to have you. And I doubt your husband would ever fall out of love with you. I think we are too hard on ourselves sometimes. But that comes with the territory I suppose.
Dear Janet,
What a lovely picture! I read your story and I am so touched. Your situation really strikes me as the epitome of unfairness. It sounds so trite I know to say that but really what makes sense in this world?
I do know this…I really think we get stuck in the physocal side of life as that is what we know best. We fight adn rally to live as of course we love life..but since having cancer I have come to realize that there is more out there. I of course have no proof but think that however long we are here all that matters is how we treated people..period that is it. So every day I just try and treat people well…I mean I always did but now I am much more mindful of this…Because we do not know whaen our ticket is up…none of us does…we think we might live until we are 80 but we do not know..It sounds like you are makign every day the best and we all should be doing this.
My prayers will be constant for you, Blessings, Lori
hi, janet. just wanted to touch base with you and let you know i have been thinking about you and praying for you and your family. i wish i could say or do something that would make everything better for you, but i swear, i don’t know what that would be. my heart goes out to you. it must be awful thinking about not being a part of your daughter’s or husband’s lives someday. i truly believe, though, that you will always be with them…on some level. i hope and pray that you have many years left and that you turn out to be a medical miracle… that one patient that noone can believe beat the odds. it can be done. don’t give up hope. keep hanging in there. let me know how you are doing sometime. i care about you! debby
hi Janet, thanks so much for leaving me such a nice message on my blog. You’re in my prairs too!as far as I can understand is that there’s no chemo for you or doesn’t it help you? or you’re better right now but it will come back?
I didn’t ask my doctors how much longer I have to live because they don’t always know it and according to “numbers” I should be alive right now (2 years ovarian cancer and stage 4 all of my dutch friends and fellow sufferers that were in stage 3 already died… and I’m still standing here in a sort of good condition… Love the pictures of your daughter and her friends by the way..
hugs Debralee
I saw your post on my husbands cancer blog. He passed away on August 6th, 2009.
Best of luck with your treatment.
Hi Janet – thanks so much for leaving me such a nice message on my blog. :) I’m so sorry to hear about your cancer and I will keep you in my thoughts and prayers.
hi again, janet. just wanted to let you know that i read your post. i do not ever have an opinion to anyone about God or religion. i think that is an individual decision that everyone must make on their own. just wanted to say that since i do believe in God, i will continue to pray for you, your recovery, and for your family. it does sound like you had a difficult life. i don’t know why some have it so easy and others seem to never catch a break. but you do have a husband and a beautiful daughter…those are definitely things to be thankful for… as i am sure you are. hang in there, janet, and keep in touch. just thought i would mention that i don’t know why all of a sudden i am coming up as anonymous and without my pic. will try to figure that out. hope to talk again soon. debby
hi, janet. just been thinking about you so thought i would drop you a line. do you know anything more about surgery? it sucks that the only treatment for you is repeated surgeries. i guess chemo and radiation won’t do anything for you, huh? i am praying for you. i don’t know much about brain cancer, so i wouldn’t even have a clue about your long-term prognosis, but i am going to pray for God to intervene and do something about that darn tumor. you keep the faith and keep hope alive. there is always hope and there is always prayer. i am here if you need to vent… anytime! debby
Hi Janet, you asked if I am in Bernville, PA near Leesport and yes I am! I am actually closer to Shartlesville and yes I go to the Reading Hospital…do you? We should get together! my email is thelongs6@comcast.net email me please!
Amy
Hi Janet,
I am so sorry for everything you are going through. You have found a good site for support. The people here are wonderful. I will pray for you. Please do not ever give up hope! Hope is something that you need to always have. Without hope you have nothing. Cancer is a horrible beast but it can be beat….Please do not forget that. If you need anyone to talk to please let me know.
Take care
Nancy