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Jacques Ditte's Profile PageBiographyOn this Easter morning 2008, I have decided to begin a diary of my life’s entry into the world of cancer. I will start by summing up what has happened so far, as my journey into this unchartered territory is still only beginning. I will post regular updates as i begin radiation in the next week or so. I am a non-smoking, very occasional light drinking, 48 year old white male. 5’8” and currently weighing 178lbs. THE FIRST SIGNS:Last summer one day i noticed my right lymph node under my neck was hard and swollen. Having been bitten by deer ticks a few weeks earlier, i thought that it might be the beginning of lymes disease.l b I went to the doctor, had numerous blood tests and all showed negative for lymes or any related tick born disease. Then i was referred to a Ear Nose Throat guy, and he proceeded to check it out and give me 2 consecutive Fine needle aspiration biopsies. They came back as ‘inconclusive’ the tissue was ‘lymphoid’. Recommendation come back in a few months for a checkup or surgery. With no pain i went back to the ENT doc in November. The lymph node was still swollen but had not changed in size or hardness. A full body PET scan was ordered, which first had to be cleared by insurance. The PET Scan was done in January. It showed that my lymph node was a ‘hot spot’ on the pictures, which i was told represents ‘unusual metabolic activity’ in that area and could be cancer. But also it might not be. My ENT recommended surgery, i agreed. I will begin my experience with a reprint of an email i sent to my friends on Feb 14th 2008 (6 days after my surgery and my being officially labeled with cancer.) My Dear Friends, My surgery was last friday Feb 8th 2008 to remove a swollen lymph node. During surgery they discovered it was squamous cell cancer.So now here is the first update on my cancer I had my first meeting with the doctor/surgeon who discussed my case. Here are the facts. The surgery to remove my lymph node revealed during surgery that i had squamous cell cancer. The cancer was contained in the lymph node. The surgeon removed a total of 5 lymph nodes in the chain. 4 nodes were cancerous as well. No adjoining tissues such as neck muscles or other tissues seemed to be compromised so he did not remove them. Squamous cell cancer in the lymph node cannot be the primary source of the cancer. The squamous cell cancer migrated to the lymph node. But the primary cancer source could have been as small as a few cells (5 or 10) i was told, so it is possible that the biopsies would have missed that if that had been the case. The next step now is a meeting with a radiation specialist. The plan will be basically to blast my neck area and try and kill the primary source and any left over cancer cells without fully knowing where they are. I believe this will happen in a few weeks once my scars have healed some. This treatment may be all that is needed and semi-annual checkups will be follow to see if it re-appears. The prognosis is difficult to ascertain as we don’t know if the cancer is gone or where it might show up next. I am in great spirits and very calm about the new reality of my life. For now i feel very much at peace with my self and hope that in some way this has been a true blessing from God bringing me closer to have a better ability to savor the moment and not worry about the trivial. To be continued… Cancer SymptomsSwollen lymph node on the right side of my neck. Surgery Description, Dates & Side EffectsSurgery: Friday February 8th 2008 Radiation or Proton Therapy Description, Dates & Side EffectsApril 22nd 2008 through June 4th 2008. It’s hell. But you’re in a blur of misery. A few months later your a better person, grateful for the blessings you have in life. Still working on regaining my saliva. |
Jacques – I just saw that I had a comment from you a while back. I don’t know how I missed it! Sorry!
I am close to the 5-yaer mark. This May will be 5 years since diagnoses. I am doing well. I have my ENT appt this Friday (Jan 13) and I know he is going to want to do that scope thing up my nose so I am NOT looking forward to it. It has even crossed my mind to not go. Still kinda on the fence about that. Had a chest xray in November and it was all fine. So I think I can pretty safely say I am cancer free.
Eating is good, still some things don’t taste right. Wine is a big one – still tastes bad to me. But that is such a small thing to give up.
Are you well?
Merry Christmas, Jacques! And may you be blessed in the New Year with good health and much happiness!
Hugs—
Martha
Thank you for you kind words Jacques. I will. Read them over and over I am sure
Hi Jacques!
I see that tomorrow is your birthday and I wanted to send you some Happy Birthday wishes! I hope you are doing well and enjoying your summer so far. May you have a wonderful day tomorrow and I wish you many, many more happy birthdays!
Hugs—
Martha
Merry Christmas !
Heidi