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A community of cancer survivors supporting each other.


Vital Info

Ellen (ellenl)

November 21, 2012

Cancer Fighter

Cancer Info

Tonsil Cancer

Squamous cell carcinoma

October 10, 2012

Lack of control. Just waiting for more people to do things to me. Being a patient.

Clatterbridge, Wirral, UK

Lump in left side of neck, benign biopsy, non urgent removal, unfortunately scc detected. Primary site left tonsil identified on PET scan

Tonsillectomy and biopsies 5/10/12



Ellen's Profile Page


I am a 42 year old mum of three ( ages 14,12 and 9). Ian a non smoker, drink alcohol rarely and am relatively fit. Despite working as a GP ( family doctor), I had never come across anyone with tonsilar cancer before and particularly in the "young" and non smoking groups. I have enjoyed reading other people's stories, and realise there are those much younger and much worse off than me.

Cancer Symptoms

Lump in left side of neck, benign biopsy, non urgent removal, unfortunately scc detected. Primary site left tonsil identified on PET scan

Surgery Description, Dates & Side Effects

Tonsillectomy and biopsies 5/10/12

Radiation or Proton Therapy Description, Dates & Side Effects

30 planned radiotherapy sessions. Started 13/11/12 end date 20/12/12 Side effects so far (8/30 therapies)- skin burn, dry sore mouth, bleeding gums, lack of appetite, nausea.
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How's it going? I was wondering if you started tx yet. Check in when you can. Blessings in your tx.♥
Hello Ellen!! Thanks for becoming a friend...have several good colleagues here who are tonsil cancer fighters, including one whom I finally met in person in Canada last month. BFAC is wonderful for that kind of personal connection. Hugs!
Is your doggy upside down for a reason?
I found this motivated, Being diagnosed of cancer comes with a lot of uncertainties. It comes with a baggage that is bound to test your very character. Cancer is not the end of your life; it actually marks a new beginning. You should not let this disease rule over your life. It has to be fought, not feared. It can be handled and it can be battled with. Many people have done it, many people have survived it, and so can you.....Above ALL...PRAYER is the BEST weapon...... Have a Blessed day everyone!!!!
Hi Ellen, welcome aboard. As CJ so well put it, this board saved my sanity as well. Only the patients who experience the effects of radiation treatments and chemo, can better explain and put things into perspective, offer helpful hints, and can give good solid, realistic advice. You will find all sorts of different scenerios and I have always been able to find the answers to my questions as well as any moral support that I need. So you have come to a good place. I wish you a quick recovery. Linda
Nice to meet you! During my radiation treatments, I used to wait in the lobby with a physician. At first I think everyone was a little shy to offer info to the Doctor as he had so much more info than the average patient. As time went on tho, we all learned that we each brought good info to the table. So ask away, the folks on this board have tips and tricks that saved my sanity! Wishing you gentle treatments, and a speedy recovery!
9/30 done! 2 out of 6 weeks over with. Am surviving so far
9/30 done! 2 out of 6 weeks over with. Am surviving so far
Hi Mary, it's really good to have contact with someone in a similar situation. Would love to keep in touch and compare notes. Have you given up work while you're having treatment? I have and am glad. My appointment times are at such variable times of day, I could never fit my work around them. Still it means I miss out on the routine. I never was one for cleaning the house! Good luck today. Take care
Nice to meet you Ellen, sorry its under these circumstances. Yes, we are at about the same time in treatments. I'm suppose to finish on 12/14. I am getting 33 treatments in 28 days. I go twice on Fridays, my Dr. Says the 2nd treatment I get on Fridays is called a boost to the primary site. I don't know if I can continue the 2nd dose on Fridays as I got a pretty bad burn on my tongue. My Dr. will check it again on Tuesday and then decide what to do. I just want to finish and get on with my life! I too am starting to get a burn on my neck, the nurse told me to put aloe on, let it dry, then put Aquafor on. It seems to be helping. My throat is getting very sore, feels like I'm swallowing glass every time I swallow. Only able to eat very soft foods, and nothing tastes good anymore. Maybe we can compare notes and help each other out! Take care, Mary
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