Cherie's Profile Page
I am a 58 year old (almost 59) female who was diagnosed with anal cancer from having a colonoscopy on 2/1/10. I had a pelvic exam in October 2009 and the doctor must have missed it when she did a quick digital exam. I told her of my symptoms, diarrhea and always feeling like I needed to go. She sent me to a gastroenterologist who didn’t examine me but treated me for IBS. When symptoms weren’t better after 3 months, we scheduled the colonscopy and the doctor found just as he was pulling out the probe. He said he almost missed it, but a nurse said “what’s that?”. Thank God, for that nurse! My last day of radiation is on April 28, 2010 and that is my birthday! I am also a thyroid cancer survivor (papillary) from March 1999. Still being followed up on for that.
Doctor and I thought my symptoms were IBS and/or hemorrhoid related. Change in frequency of bowel movements, pressure in the rectum, blood sometimes.
Surgery Description, Dates & Side Effects
Radiation or Proton Therapy Description, Dates & Side Effects
33 treatments radiation treatments. Had to have a 2 week break after my 2nd week of chemo and 25 radiation treatments because urinating became so painful. Nausea, diarrhea, low red & white blood cells, low potassium.
Chemotherapy Description, Dates & Side Effects
Nausea, diarrhea, low white blood cells, low red blood cells, low potassium
Hoping you can make it 6/22 get together same place Rockin Baja Lobster…Hugs
Well, hello there and happy birthday! Enjoy your day!
Happy Birthday, Cherie! I hope you have a wonderful day! Hugs!
Thank you for the blood check recommendation you gave Stephanie…I left 2 meassages for Oncologist nurses yesterday, thinking something to look at maybe…of course I left my cell phone # on the message, I think they called home phone and didn’t leave a message…I guess maybe 3-4 calls need to be made on Monday…really looking forward to meeting you on 6/2…Jeanne
She has 4 different chemo drugs. The last one is a push of 5 FU and she goes home with a fanny pack of 5 FU. When she is getting the chemo she sleeps alot. This last time though she didn’t. I have enjoyed the time spent with her when she is awake. We talk and laugh, alot! She starts out with ice water… one of the drugs makes her REALLY sensitive to anything cold, so I go and get her hot chocolate when she is getting that one or run out and get her some chicken noodle soup from Chick-fil-A. I do not know when she will get the results from her scan but I will let you know when I know.
You are so welcome.
My sister has just finished her 3rd chemo treatment. She goes every other Wed. It’s one of those all day sessions. 9-5. Today she had a CT scan to see what if anything the chemo has done to the tumor. I can’t wait to get the results of this scan. Praying that thing is shrinking! She has ups and downs. Today my niece was telling me my sister was down and weary from all the trips to the oncologist’s office. She goes everyday for fluids. I need to try to help her keep positive and in fighting mode. I appreciate your prayers and concern.
Have a great birth WEEK. That’s right, celebrate all week long. For us cancer survivors we cannot celebrate each birthday enough!
I am sorry this is so early but I don’t want to miss telling you HAPPY BIRTHDAY next Saturday so I am being safe and saying it today.
I hope your birthday and everyday are wonderful!
Hi again! Now I understand. The old ones just are metal detectors, no radiation at all really. The new ones (there are some that do not use radiation but that’s not what TSA is buying) are unknown; the government says they are safe but they won’t reveal any information, and a number of physicists have raised serious questions about these machines. Be safe!
Hi Cherie…not sure what you mean by new scan machine and old scan machine…how can you tell when you get to an airport? I really don’t trust either one, as there has not been enough experience with them to know if they malfunction, if they do how much radiation do they deliver – you won’t know if you are standing in front of one that is poorly maintained….In any case you may be picked out for a pat-down randomly, so you might as well ask for one to start! I hope where you are that the TSA people are well-trained. This airport seems to be a training post and many of them are not very careful about what they do.
Hope you have had a great weekend…
Just popping in to see how you’re doing. Haven’t heard from you in a while. Hope that all is well and life is treating you good. Hugs.
Hi, I am doing terrible, because it is multi-focal hpv disease they can do no more burning, so why have my bowels taken out? Spent four days crying and burst a blood vessel under my left eye. My husband can’t deal with me, so he moved to the basement. In the years since I have been sick, he has taken me to one appt. He deals by being verbally abusive. That is ok cause I blank it out(he is bi-polar) In an earlier post the clinic got mad at the physicans’s asst.Dr.Larsen for having demerol for after procedures. One shot in afternoon and one the next day. The clinic manager treated me badly, can’t recall her name. Saw Dr. Konkol yesterday and said he can presribe demoral but only in pill form. He wants me to go to University of San Francisco. Have a friend who would go with. Love Linda
You asked about growing up in California. My dad worked for the federal government my entire life, and we moved to CA when I was in fourth grade. First we lived in Stockton then moved to Modesto. So when someone asks me where I am from it can be a tough answer:) I always tell them my formative years I lived in CA and I do have my very CA personality, that gets me in trouble here in the South.
When I was real young we lived in Gunnison CO, my sister and her husband had lived overseas for the past 23 years and decided that they wanted to retire in Fort Collins. It is a great town to retire to, with some really neat attributes. Since my sister is the one with kids, we figure if nothing else the kids will always come home with the grand-babies:) which will give us (my mom and I) more of an opportunity to see the kids. My mom totally missed out on being around her grandchildren since they could only come back to the states every 3 years. My sister did a wonderful job with the kids feeling connected to us, so much so that they were adamant that they were going to live in the US when they became college age, so that they could be closer to us. Unfortunately since my oldest nephew has been in the states, he spent one summer with me when I was living in Memphis TN because he had some bad grades and I kept him and whipped him into shape, which was not always a fun summer but we made it through it to the point that he always says that Dannah should have had to spend a summer with me to grow up. But I have been dealing with cancer ever since she has been in the states going to school. Oh well life goes on. The most my sister and her hubby would do is later down the road buy a winter house in AZ or possibly somewhere else to avoid the coldest part of the winter. fort Collins does not get as cold or as much snow as other places it is in the plains North of Denver and only 40 minutes to the state line of Wyoming and Nebraska.
I have already had to go through changing doctors since I moved from TN to TX and once in TX I had to change doctors twice so I am actually on my third set of oncologists. I loved my Memphis team and HATED leaving them, my referral oncologist was HORRIBLE so I finished treatment with him and in the middle of that he went out on medical leave so they switched me to another doctor and he was nice and I did connect with him better but the entire office was about making money and not the patient care when it got down to it. But I would have stayed with him, but medicare kicked in at that point and the oncology office did not take my medicare advantage plan, HEalthspring so I was forced to change doctors and got a fabulous doctor that had just finished her fellowship at MD Anderson and I really connect with her and she has tried to be proactive with me. She told me that she would have thought from reading my initial diagnosis that I would have had cancer pop up between some of the breaks in chemo I initially had, but obviously God had other purposes. The toughest time I have had was finding a gyn/onco because we are in just small enough town that there is only ONE and he was at the clinic that I was initially referred too so about the time we were making some head way with what to do with the non-healing issues I had to stop seeing him and it took almost six months to find my new doctor that was willing to take my case. Apparently gyn/onco do not like to take a case that was some other doctors and then if they do they do not want to suggest anything. But I found an awesome doctor in fort worth which she was quick on not wanting me to suffer any longer so that is how the ball got rolling so quickly once I finally got my insurance to approve to go out of region to see her.
With that said I am not too worried about finding new doctors, but I have learned to things, I need female oncologist and hopefully nothing more than a gyn once we move to CO that specializes in special cases, which I should be able to find in Denver. But the Fort Collins medical area has a really good medical program.
Now where and why does your hubby want to move to NC or TN? Does he want to move to East TN? I really like Knoxville but the smaller communities you start dealing with the Appalachians and it can be tough! The one thing I have found out in the past 18 years from living in the south you will never be a true southerner and be accepted…I only get by because I was actually born in GA and my dad was a true southerner and my mom was the Californian :).
Where do you live in CA?
Cherie, so sorry it has taken me so long to get back to you. My computer has been acting up and this is the second time I am sending you this message lol. Anyway about 4 days post surgery, I use the cream for at least two weeks. They make a suppositiory also. Your Dr. can contact them Moudrys RX-Compounding Pharmacy tele 651-645-9715. It contains Nitro/Lido and a antibiotic Mupirocin. It really helps! My general Doc and the pharmacy contacted UCSF and I also take Indole-3-Carbinol 200mg twice a day. The University did studies on this a and it helps slow down cancer cells. So, I think we all should take it. Because, I do love sugar I had a Choclate Ice Cream bar last night. Got to have some pleasures! I also drink Naked’s pure Cocanut water. Hard to find here. Otherwise, I eat things that don’t upset my gut too much. The water has a lot of potassium! Keep in touch, am geting a new/used computer. Linda
Hi Cherie…No news yet. I am trying not to obsess!
Years ago I made a soup from an ad in Sunset Magazine for four-bean soup. One can each of garbanzos, black beans, and two others of your choosing, plus a jar of salsa – determine your own level of heat. Add some sliced sausage if you like, or cubes of cheese. Heat it all up together. Sprinkle some chopped cilantro leaves, or parsley if you prefer that.
Thanks Cherie for the Birthday wishes….yes we are both Taurus and stubborn….haha My husband through me a party yesterday and I drank way too much and I am struggling today! I did have a good time though…lots of friends and family. Take care and thanks again.
Doing ok still go through emotional stuff and fighting a cold right now….Thanks for asking!
Happy Birthday Cherie! and many, many, more…..Have a fantastic day!
Thanks for your answer, it made me feel better
I am not sure but I think my tumor was about 1 inch to start and they called it T2
I will be hopeful to have the same result as you.
cheri, My docs are at Cedar Sinai in Beverly Hills. It is a ways for me to drive and I stay at a motel at least one night each trip. I pray that you are doing well.
If I were a bit closer to Bell Buckle, I would come up and see you on auction day. I hope it goes well. I actually went past the exit for Bell Buckle in the middle of the night last night. My husband’s father is very ill, so we left our house late last night and drove all night to Illinois, where we’ll be staying until something changes. I’ve probably run past the place where your grandmother lived on Peachtree, as that’s the road where the road race is every year, which I’ve done several times. However, I’m bowing out this year—too much hassle to get in the race! Have a safe trip to Tennessee!