Brian's Profile Page
I am 51 years old and I have been in the safety business for about 25 years. I currently work with a large Colorado County government in the Risk Management Department as the Safety and Workers Compensation Administrator. I have a wonderful wife and child that are very supportive.
I thought I had a cold and a minor soar throat. Went into my doctor who thought I had tonsillitis and gave me two weeks of antibiotics. I took them and they didn’t help. He referred me to an ENT who took one look in my mouth, sat down, and told me it was cancer. He took biopsies of the tonsil which confirmed that it was cancer. He then referred me to the Porter Cancer Clinic and my surgeon. The rest is history…
Surgery Description, Dates & Side Effects
Surgery was done December 27th. Removal of right tonsil and neck dissection removed 34 lymph nodes which 3 were were positive. There are some slight issues with my shoulder and arm not having full range of motion but this is being worked out through physical therapy. 7 weeks post surgery and the swallowing is totally back. Had to have 5 teeth removed prior to radiation treatment though and that was a minor setback.
Radiation or Proton Therapy Description, Dates & Side Effects
I begin radiation February 20, 2012 for 6 weeks.
Chemotherapy Description, Dates & Side Effects
Begin Erbitux treatments February 13 2012 and finished on May 2nd.
I am participating in the Erbitux clinical trial.
Happy Birthday…Hope you’re fishing! (but, you’re probably working LOL). Either way, ENJOY! Hugs, Karen
Happy Birthday Brian!
Here’s hoping you have lots of festive fun. And my all your wishes come true.
But in trout world a 31/2 pound trout is like a 40 pound striped bass in its world I have a 6 pound brown trout on my wall and that 40 pound striper went in the freezer ….....
Brian, My diagnosis was very similar to yours. Although he didn’t say those exact words I knew he already knew. I had a FNB and it came back negative. ENT then did a surgical biopsie. Thank God he didn’t rely on FNB. My question is why didn’t our GP rcognize it as cancer??
The very good news is that you have an excellent chance of a cure. HPV-related SCCs respond to treatment much better and have less chance of recurrence than SCCs due to other causes. Cure rate numbers for your type are over 90%
I am so sorry you had to join the ‘tonsil club’. Welcome to the blog. We are here for you whether you need advice, need to vent, or just want to ‘talk’.
On December 15th, I will be cancer free for one year!
My advice to you, which for me is hind sight, says when you start radiation, keep you neck and mouth moving. Open and close your mouth even if you can’t talk at some point or eat. Move you neck front – chin to chest – and back – several times a day. They will stiffen but that could make life easier for you when you have start trying to get them back to normal.
Also make sure you get enough nutrition and water.
Hugs and prayers, Sandyjo
Thanks for your comment on my blog – I’m newly diagnosed, to. I’m sorry you’re on this journey -but glad to have someone who is new to this like I am to talk to.
Sorry to hear about your diagnosis but welcome to BFAC. I’ve been a here since July and it’s been a big help.