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Biography49 years old diagnosed July 2008 with anal squamous cell carcinoma. Waiting to have the biopsy to stage the cancer. Cancer SymptomsSporadic bleeding and uncontrollable itching at night. Surgery Description, Dates & Side EffectsSurgery every 3 months to remove any and all existing cancer cells Comments: |
Hi Kim, Thank you for the post to my blog. I don’t think of myself as having any greater insight than anyone else. I just like to write and put things into words. My work (as a yoga instructor) is to bring out that which is already inside. I just get to practice more at this and the ideas and thoughts I present are Universal … that is why they resonate with you. I so appreciate knowing that it is helpful. I hope you are doing good and continue to heal Kim.
best, Nova
Hello Bo – thank you for your message and welcome. Good to meet you and I look forward to knowing you more.
I take your point on the education and HPV issue and have been reading around this afternoon. I haven’t really understood what the HPV issues are for us now post-treatment / in recovery (if we have been exposed to HPV in the past / it has caused the cancer). Are there treatments available to kill off lurking virus? If you could share any links you have to relevant infos I would be grateful.
Wishing you well, janet
Hi Bo,
thanks for your post. Yeah, when I went thru I guess i was a pioneer of sorts…nothing on the web except related to HIV men. Its amazing how there is so much info. out there but we still need a lot more…. i hope to keep posting and organize info. some day when Im not so busy
Hi KIm, thanks for the post to “tools” hope you are well these days and that your holidays are wonderful ….may the new year bring us all radiant health! xo nova
Hey Bo,
I got a notice you sent me a comment. I can’t find it but I wanted you to know I am thankful for you being in my life and for being so kind. I made it through the month October without falling apart. A piece of me will always be sad but I am so proud to have been Gemma’s mom even if it was for just a little while. Thank you.
Thanks again for your kind words. Julia and I are holding each other up. My friends are keeping me busy and I took a class called Angels in Waiting which helped lift my spirits. I feel Gemma’s presence more and more. I wish you all good things. Love, Nancy
Thanks for the update on Kathy. What crappy news, but I understand her decision. :-(
Dear Kim,
I guess I should date my entries…these began 5 years ago this coming Sept.28th. My 7 surgeries, 8 plus colonoscopies, 4 times a year scans and two 6 month bouts of chemo. have been spread over the those years. I am at this time loving the words “no visible signs of disease”. Don’t we learn to treasure those times!? My thoughts go out to you, and I thank you for your encouragement. Larissa
Thanks for the info Kim. I do not have a high tolerance for pain. But what I am taking right now works. I will take the norco the way she has prescribed it now. I’m sure once I start treatment I will take the oxycontin then only use the norco for break through. I just feel the oxycontin right now is to strong. Im sure I won’t feel that way in a couple of weeks. I promise i’ll be cooperative :) my husband will see to that. LOL. Thanks for caring. And as usual you all have been such a big help to me and I do appreciate it.
God Bless,
Eva
Kim,
Thanks for caring and being so sweet. Theodore is still cute as a button. A little chubby from all the Gramma spoiling. The Vet hollered at me so I will have to cut back on treats. He gets into the cat food so I have to separate them at meal time. His Uncle Joe takes good care of him and they keep each other good company during the day. Joe is 100 pound Shepherd/Collie and one of my best friends. He is a gentle giant with Theodore. Please continue to be healthy and happy. Nancy
Kim,
Thanks for your support. Mind boggeling is an accurate statement. Test after test. I have always been a control freak. This has taken alot of that away from me. And you know your right I am going start speaking my mind! It’s my body my treatment. Thanks Kim looks like alot of people a going to be getting a big piece of my mind from now on
That is once I get past this whiney why me stage. Lord will I ever get there? I know once I get the other biopsy back and know what I am facing it will be less stressfull at least i’ll know exactly where my battle is going to take me. I’m ready to start this fight!
Good Bless you in your journey also,
Eva
Hi Kim,
Thanks for your continuing support. I can’t wait to be finished with treatment…half way there…keeping my eyes on the prize. :)
Hi Kim,
Thanks for your comment on my hair post. I loved reading your story about how you would wear different hats to cheer up your friend. You sound like a very caring soul and have a great sense of humor. I think it’s important to laugh and smile even in the tough times so I really enjoyed your post. Take good care.
Wishing you all the best~
Hi Kim,
Thank you for your great comments! Yeah, I’m ready to give this cancer thing a run for it’s money, indeed. :)
Stay strong and take good care!
Best Regards,
Kim
Hey Kim:
Thanks for the note. I think you are wise to check out things with your gyn. So many of the symptoms are so very vague. I would recommend that along with the ca125 test to also ask for a transvaginal ultrasound. That gives them a looksee and is generally recommended. As you’ve probably read, you can have a low ca125 and still have ovca. My symptoms were bloating, feeling full, loss of appetite and weight.
Good luck and don’t let them brush them off. You need to get peace of mind. Just tell them you need to be humored.
Love and hugs
Teresa
Kim:
Thanks for the link…her story was so poignant. Yeah, some of her story about before dx sounded familiar to me. Question to you but if you don’t want to answer, I understand. What’s going on? Why are you getting a ca125? I hope it’s just a precaution but if you have any questions please ask me. I feel like a pro with all of this and if I don’t have the answers at least you’ve got someone to just talk to.
Hope I’m reading more into your comment than there is but…
thinking of you
Teresa
Kim—
I notice from reading Tmay’s blog that you are an Eric Clapton fan—isn’t he the best! He ranks at the very top as my favorite musician. I also get a little sad when I listen to Stevie Ray Vaughn, as I think he would have to be second on my list—he left us way too early. Love the guitar!
I am mainly posting here to ask you a question. I know you mentioned that your father had ALS. I am still planning on running (or walking if necessary) in a 5K race this Saturday for the benefit of ALS. I will be putting my aunt’s name on my T-shirt and doing the walk in her honor and also in honor of your dad, if you will just provide me with his first name. That will make the race that much more meaningful for me. I have talked my husband into joining me, so it may be more walk than run, as he’s not a runner. But it’s all for a good cause!
Thanks!
Martha
Kim,
Thank you so much for checking in on me. What a great post. This blog if filled with such loving and caring people.
Things have been ok =) You are so right…losing a loved one changes you for sure. I miss her so much and there are so many times a day I wish she was here. My cousin is having a baby, and we are throwing a baby shower for her…well, we were making the favors and just KNEW that if my mom were there, they’d have come out perfect. My dance students won a VERY big dance competition and I so wanted to be able to tell her. SO many little things like that. I believe too, that she is not far from me…sharing in my joys and sorrows every step of the way.
I think that one good thing that I have learned recently is to live each day. When I am trying to make a decision like whether or not to spend the money on the good seats for the New Kids On the Block conert..lol..I have a little voice in my head that says “you only live once”...
I hope you are feeling well…and thanks again for the post. You are all in my thoughts and prayers every single solitary day.
Love,
Lisa